Caregiver Support: National & Local Agencies
VA St. Louis Caregivers Support Program
Click on the name of the agency to be directed to their web site. (NOTE: All links on this page will take you outside of the Department of Veterans Affairs Website. VA does not endorse and is not responsible for the content of the linked website. The link will open in a new window.)
American Cancer Society (ACS) Tel: 800-227-2345 (See “Cancer Support Community” for caregiver support group information)
- Dedicated to helping persons who face cancer.
- Caregiver Information: Visit the “Caregivers” section of the website or call to request information regarding : Being a caregiver, Coping as a caregiver, Tips for talking with the person who has cancer, Online communities and support, Stories of hope.
- Transportation: Call the main telephone number for information about free transportation to and from treatment through the Road to Recovery program.
- Treatment Lodging: American Cancer Society Hope Lodge of St. Louis provides cancer patients and their caregivers from out-of-town with a free, temporary place to stay during treatment. Call 314-286-8150 for eligibility and referral requirements. Address: 415 Lindell Blvd., St. Louis, MO 63108
- Visitation and Companion Services: ACS in Maryville, IL provides an Illinois-specific program for peer to peer support for people facing a cancer diagnosis. Call 800-782-7716 to schedules dates and times as needed.
American Heart Association Tel: 314-692-5635
- The nation’s oldest and largest voluntary health organization dedicated to building healthier lives, free of heart disease and stroke. To help prevent, treat and defeat these diseases- America’s No. 1 and No.3 killers- we fund cutting-edge research, conduct lifesaving public and professional educational programs, and advocate to protect public health.
- Caregiver Information: Visit the “Caregivers” section of the website or call to request information regarding: Caregiver Rights and Responsibilities, Journals and Planners, Resource Books, and Tips for: being realistic, thinking positively, exercising, cooking and communicating with family, loved ones and healthcare professionals.
American Red Cross St. Louis Area Chapter Tel: 314-516-2800
- Provides relief to victims of disasters and helps people prevent, prepare for and respond to emergencies.
- Family Caregiving Program: Reference guide and DVD consists of nine individual topic-based modules for caregivers covering topics such as home safety, healthy eating, bathing, legal and financial issues and self-care. Can be purchased for $25 from the American Red Cross online Store. Call for information about classroom-based instruction (1 hr./topic) in your community.
Arthritis Foundation Heartland Region (Offices in: Illinois, Indiana, Iowa, Kansas, Missouri, Nebraska) Tel: 314-991-9333 *See “National Family Caregivers Association” for caregiver support group information.
- The mission of the Arthritis Foundation is to improve lives through leadership in the prevention, control and cure of arthritis and related diseases.
- Caregiver Information: Visit the “Resources” section of the website specifically aimed at helping caregivers learn about: home safety, organization, training, connecting with others, self-care, utilizing resources and suggested reading.
United Way of Greater St. Louis Tel: MO: 314-421-0700/636-939-3300 / IL: 618-251-0072/618-8776780
- United Way of Greater St. Louis unites people of different backgrounds and interests who work together to strengthen health and human services in Missouri and Illinois.
- Caregivers can refer to the website/service line to learn more about United Way programs and collaborations which serve: basic and emergency needs, health and wellbeing, mental health and senior services.
Cancer Support Community Tel: 314-238-2000
American Diabetes Association Tel: 314-822-5490
- The American Diabetes Association’s Saint Louis office is committed to educating the public about how to stop, prevent and cure diabetes and to improve the lives of all people affected by diabetes.
- Information for caregivers: Visit “Food and Fitness” on the main website to access MyFoodAdvisor. This free online tool provides new recipes, cooking tips and a monthly meal plan. Under the “Living with Diabetes Tab” visit the section called “Seniors” to find information about living with diabetes and hearing loss, check-up/ vaccine/financial management, home safety, and long-term care tips and options. The local Saint Louis, Missouri chapter webpage/contact number provides information about upcoming events e.g. community walks, awareness days and events for family and friends of individuals with diabetes.
American Liver Foundation Mid-America Division (Serves Missouri, Kansas, Iowa, Nebraska, Oklahoma, North and South Dakota) Tel: 314-352-7377
- Advocates and promotes education, support and research for the prevention, treatment and cure of liver disease.
- Information for Caregivers: Visit “Patients and Families” section for caregiver tips and self-care activities. The American Liver Foundation partners with CaringBridge to offer free, personal and private websites that connect people experiencing a significant health challenge to their family members. You can create your own site at www.CaringBridge.org/liverfoundation. Here, caregivers can share their story, make journal updates and receive messages of support from relatives and friends.
American Lung Association of Eastern Missouri (ALAEM) Tel. 314-645-5505
- ALAEM educates today’s youth on the dangers of tobacco use and provides resources to teens and adults that have made the decision to quit smoking.
- Information for Caregivers: Visit “Caregiver Corner” at http://events.lungevity.org/cg/index.html for information about: asking for help, caregiving tips, caregiver fatigue, life after lung cancer, being a healthcare advocate, insurance, finance, employment and end of life planning. Under the “Resources” tab, caregivers have access to: medical provider databases, help with transportation and meals, patient legal advice, bereavement support etc.
Asthma and Allergy Foundation of America St. Louis Chapter Tel. 314-645-2422. The Asthma and Allergy Foundation of America, St. Louis Chapter (AAFA), a United Way Agency, has been serving the asthmatic and allergic needs of the St. Louis community for over 30 years.
Alzheimer’s Association 24 Hour Helpline 1-800-272-3900
The Leukemia and Lymphoma Society’s Gateway Chapter Tel. 314-590-2230
- The Leukemia and Lymphoma Society’s mission is to cure leukemia, lymphoma, Hodgkin’s disease, and myeloma, and to improve the quality of life for patients and their families.
- Information for Caregivers: Under the “Disease Information and Support” section caregivers can find information and resources related to: emotional support, balancing work, long-distance caregiving and bereavement.
National Alliance on Mental Illness (NAMI) St. Louis Tel. 314-962-4670 / Local Crisis Response Tel. 314-469-6644
- Mission: To improve the lives of persons with mental illness and their families through education, support, advocacy and research, in order to achieve the highest possible quality of life.
- Support Groups: Click “Support Groups” tab for basic information, group dates and times.
Cancer Care Tel. 212-712-8300/800-813-4673
- Free, professional support for anyone affected by cancer.
- Caregiver Information: Click “For Caregivers and Loved Ones” tab for links to free online or telephone support groups led by oncology social works, education workshops and podcasts, publications and forums for asking for and receiving answers related to caring for loved ones with cancer
Cancer Support Community of Greater St. Louis Tel. 314-238-2000
- Offers professionally-led support groups, networking groups, educational workshops, nutrition and gentle exercise program, and stress-reduction classes utilizing the Patient Active Concept to empower and educate individuals affected by cancer.
- Support Groups: Click “Support Groups” tab or call the main telephone number for information about meeting location, dates and times. *All support groups require a Group Preparation Meeting with the Program Director before admittance.
Missouri Lung Cancer Alliance: Barnes-Jewish St. Peters Hospital, Siteman Cancer Center Tel. 800-600-3606
- A National Cancer Institute Comprehensive Cancer Center
- Support groups: Click “Support groups” tab for information about meeting locations ,dates and times for the main campus, St. Peters campus and West County campus.
National Multiple Sclerosis Gateway Area Chapter Tel. 314-781-9020/800-344-4867
- Helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.
- Support groups: CarePartner Family and Friends Group meets at the David C. Pratt Cancer Center from 6:15-7:45pm on the first Tuesday of most months. Call Stacey Sickler at the Gateway Chapter to confirm date/time and to RSVP.
- Other resources: Click “Community resources” for information about Deliver a Smile, a program which arranges for volunteers to visit individuals with MS who are unable to leave their homes unassisted, are socially isolated and/or live in a nursing home or skilled care facility. Call the local or toll free number for more information about: limited counseling and consultation on care decision-making, financing long-term services, adult day care, respite care, home care services and nursing facilities.
American Parkinson Disease Association (APDA) St. Louis Chapter Tel. 314-362-3299
- The American Parkinson Disease Association St. Louis Chapter’s mission is to enhance the quality of life for people with Parkinson’s disease, their families and caregivers in our communities within Missouri and Southern Illinois and to provide funding for ongoing Parkinson’s disease research.
- Caregiver Resources: Click “Services and Programs” for information about respite care and receiving time out to relax and take care of personal needs. The caregiver can receive in-home or adult day care including non-medical services such as bathing, dressing, hygiene, ambulation assistance, meal preparation and assistance, companionship, safety supervision, medication reminder and light housekeeping. Click “Support Group” links for information about caregiver groups in Illinois and Missouri.
Pancreatic Cancer Action Network-St. Louis Affiliate Tel. 877-272-6226
- Pancreatic Cancer Action Network is the national organization creating hope in a comprehensive way through research, patient support, community outreach and advocacy for a cure. The organization raises money for direct breakthroughs in prevention, diagnosis and treatment of pancreatic cancer.
- Resources for caregivers: Click “Facing Pancreatic Cancer” to learn about the Patient and Liaison Services (PALS) program which provides free information and services for patients, families and health professionals. A PALS associate can provide support with making informed decisions e.g. about the disease, treatment options, specialists, clinical trials, support groups, diet, nutrition etc. Complimentary educational packets are also available upon request.
Brain Injury Association of Missouri Tel. 314-426-4024/800-444-6443
- Provides support, education, recreation, referral services and advocacy for persons with brain injury and their families as well as professionals and the community.
- Resources for caregivers: Under “Resources,” you can access: survivors and family members support, peer support chat rooms, families and care givers materials. Click “Support Groups” to find local meeting dates, times and locations (listed by region throughout Missouri, Arkansas, Illinois, Iowa, Kansas, Kentucky, Nebraska, Oklahoma and Tennessee).
Paraquad Tel. 314-289-4200
- Empowers people with disabilities to increase their independence through choice and opportunity.
National Kidney Foundation of Eastern Missouri and Metro East Tel. 314-961-2828
- Dedicated to preventing kidney and urinary tract diseases, improving the health and well-being of individuals and families affected by kidney disease and increasing the availability of all organs for transplantation.
The Lupus Foundation of America Tel. 202-349-1155
- Dedicated to finding the causes of and cure for lupus and providing support, services and hope to all people affected by lupus.
Muscular Dystrophy Association Tel. 800-572-1717
- MDA is dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research as well as providing comprehensive health care and support services, advocacy and education.
- Resources for caregivers: Under “Services” click “Caregivers” to access: the caregiver’s role, team, support groups, tips for coping and asking for help, exercising, planning ahead for emergencies and more.
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